Charlie Knuth Obituary, Death Cause – The life of Charlie Knuth has been cut tragically short. In a message on social media, it was stated that “Trisha is currently at Children’s Hospital in Milwaukee with her son, Charlie Knuth, who is being treated in the Pediatric Intensive Care Unit.” Because Charlie is in such serious condition, the family would greatly appreciate it if you could offer them your thoughts and prayers.
Around five o’clock yesterday evening, Charlie experienced the first symptoms of his illness. Around twelve in the morning, Trisha was forced to dial 911. They were taken to Theda Care, and then an emergency flight was organized to take them to Milwaukee before morning. The fierce heart of Charlie beat for the very last time. Charlie passed away. We made history by leaving the hospital without him for the very first time. In our arms, he passed away calmly and without any discomfort. We are in shambles and in terrible pain.
Over ten years ago, in the lab, the mutation that caused Charlie to have EB was the first one to be fixed via genome editing. His reprogrammed cells are currently doing nothing but idly waiting for FDA clearance. Obtaining FDA approval for the diseased cells that have been fixed is a lengthy process that requires a significant investment of time, money, and power.
Eddie Vedder and his wife, Jill Vedder, of the band Pearl Jam collaborated with the Knuths to raise awareness and financial support for this extremely rare condition. A story about EB that featured Charlie was one of the things that producer Judd Apatow worked on putting together. Even the smallest amount of pressure or movement applied to the skin (or the internal tissues of the body) can cause significant injury.